Wednesday, December 16, 2009
Tuesday, December 15, 2009
Welcome to the current newsletter issue of Advances in Medicine
(AIM) - Take AIM against pain, brought to you by Dr. Tim Sams
and My Pain Relief Doc - www.mypainreliefdoc.com
Feel free to send me, Dr Tim an e-mail with your own thoughts and
experiences. DR TIM Email: email@example.com
Creativity is one of the most important aspects for
self-management of persistent pain. In ABC's of Pain Relief
and Treatment: Advances, Breakthroughs and Choices, Chapter 8
discusses "The Terrible Truth about Coping with Pain." The
terrible truth is that people cope with pain the way they have
coped with life before pain, though they can change their
coping style. They do not morph into a completely different person.
They approach pain with the same strategies they have approached the
rest of their lives.
There are seven basic choices that determine life effectiveness
with pain, which are arranged in a hierarchy of importance:
honesty, courage, independence, creativity, planning,
initiative, and perseverance. In previous newsletters, we have
discussed honesty, courage, and independence. Now, let's
Creativity is the strangest of the seven choices. You may not
think of yourself as a creative person if you don't draw,
paint, or write poetry or music. You may not conceive of
creativity as a choice. How does one choose to be creative, if
you're not a creative person?
First, let's define creativity. To create is to bring
something into existence. Creativity is the process by which
one creates. Creativity is not confined by any particular outcome.
Creativity is a process that includes a willingness to see the
familiar in a new way-to change perceptions in a novel way
that encourages the birth of a unique entity.
Certainly, you can be creative with art, music, or writing, to
produce a painting, a song, or a story. But, you can also be
creative about solving a problem, coping with an issue, and
communicating with a friend.
You can give yourself permission to try a new angle, or a new
perspective. You can take a fresh approach to an old problem,
perception, attitude, belief, or behavior. You can imagine.
You need to be honest about what the reality of the situation
is. You need to be courageous about trying something unfamiliar
and scary, risking humiliation or failure. You need to be
independent, not following what other people say or do, but
what works for you, in your head and your heart. Only then can you
be free to explore options and try multiple strategies. Only then
can you imagine what it would be like if it were different,
whatever it is. Only then can you imagine the process necessary
to make it different.
So now we come to pain. Maybe you've been hurting for a few
months, or years, or decades. Regardless, you've developed
patterns and approaches to pain that were born of different
medical treatments and different outcomes. You've tried
numerous strategies for dealing with pain, or not.
You may have settled into a rhythm of pain and misery and brief
respites from both. You may be certain about what makes your
pain worse and what makes it better. This knowledge and tragic
experience can and does conflict profoundly with the creative
process, and with hope. Hope needs alternatives. It needs
options. It needs to believe that there is a path that involves
less pain (by the way, this is always true).
Read some pain books, and check out some web sites. My book is
certainly an option and contains several hundred strategies for
coping with pain-no, for decreasing pain and increasing your
activity and effective function. If you have accepted your pain
problem, you know that you will have pain for a while. Let
yourself experiment with different strategies, no matter how
strange they seem. Be a scientist. Maybe there is a technique
you have tried but which you can try in a different way that
might be successful.
Hurl yourself into fresh snow. Carve out a new snow angel-a
new path. Is there any greater hope to create something new
than the moment you commit to fresh, untouched snow, or canvas,
or paper? Since you are reading this newsletter, it is likely
that you are unsatisfied with the amount of pain relief you are
getting from your current medical and self-management
Do something different-something unique-something weird.
Drop the censor that says, "Well, that doesn't make sense."
Find your own path. Listen to other people's suggestions, but
don't assume that other people know what is best for you. Be
your own creator.
Most people approach pain management by hanging desperately
onto whatever the doctor treating their pain recommends. Know
that, in the long-term, what you do for your pain is so much
more important than what your doctor does. If you do all the
same things, you will have all the same pain relief, or lack of.
You have to imagine it before you can make it happen. Imagine
hurting less and then make it happen. Stretch yourself-reach,
and grab handfuls of new stars. Go to a place you have never
been before. Therein lies the hope for real change, and a
Dr. Tim Sams
My Pain Relief Doc
Copyright 2007. Dr. Tim Sams and My Pain Relief Doc.
All rights reserved. www.mypainreliefdoc.com
You may freely distribute a copy of this newsletter or use it
on your web site or RSS feed, as long as you include the entire
article, along with the web links and copyright information.
Thanks, Dr. Tim
I am thankful for my great doctors, I have learned in pain to be grateful, even for the tiny things in life, like clean air ( I fight asthma too)
Here is an exercise I do, maybe you would like to try it?
When I lie in bed, I try to think of as many new things to be grateful for.
Today I am very grateful for wise and kind Drs, For good friends, for a hug from my grown daughter. I am grateful for the clean water and the warm home. Mostly I am grateful for my husband, who is suffering now with tooth pain. He has been my most ardent supppporter.
Here is a video and I hope it gives you some comfort.
Saturday, October 3, 2009
Well over the years, HE has proved himself wonderfully faithful to me. SO I am grateful and I wanted to share some of the verses I found on Faithfulness with you.
Maybe you will have some more encouragement from it.
BEGINNING IN ATC ART save scraps of papers, pictures, magazines, glues. Gather a few items together, Use an old playing card or cut cardstock to size 2 1/2 x 3 1/3 inches.
Take crayons or markers and doodle, and get an idea, a one word idea, or theme.
Write it decoratively on a piece of scrap paper, or type it in a fancy font.
If you have some ink pads around you can use it to darken the edges of the card.
Glue your designs on, and then embellish with a button or a charm or some ribbon.. whatever you have.
WHY NOT START with One of these words?? What do you see when you read the words?
HOPE, PEACE, SAFE, HAPPY, ENCOURAGE, DELIGHT, FRIENDS ,JOY, THANKFUL, GRATEFUL..
When you finish your card sign and date and mark your email..
YOU NOW HAVE ART IN YOUR POCKET!!!
Now find a friend to trade your Altered Trading Card WITH , AND TEACH ANOTHER FRIEND IN PAIN HOW TO DO THIS!
I Hope this adventure gave you a pain free day... as you enter the collage world of ATC's.. I warn you, they are like potato chips.. you will want a million!
I recommend using easy Knit patterns, or Spinning something simple on a drop spindle, or playing like you did as a child, with crayon or watercolor... and let your mind just enter this peaceful place.
Pray and ask for guidance and Peace. I find with tension the muscles make the pain worse, so work on a project that is NO FAIL.
So please share, what are you working on??
I am now plying some white alpaca and in between I am knitting a lace dishcloth in cotton.
Be in the happy zone. Here are some patterns to get you started...
Learn a new Knit Stitch
Easy Crochet Patterns
Thursday, September 24, 2009
Saturday, August 29, 2009
I think of all of you round the world like me... and we have these times of intense suffering, and it feels there is no meaning to it at all.
I am blessed to have a husband who understands, but no one, no matter how close can really know the pain as I can't know his exactly.
We lost 4 babies before birth, I had a rare 5 weird things, something not seen here in VT. At the end of that journey the Infertility Dr said, " We believe from your years of tests and temp charts you may have lost over 30 babies, but early on in pregnancy,". The next moment He said," You can never ever get pregnant again. You AND the Child will die".
I moved into the abyss. I railed and yelled at God. HOW could HE do this to me? We loved HIM, Why keep a child from us? But in time, the ONLY comfort came from this verse given to me by a friend. I held to this as a lifeline.
Again, tonight as I wept in pain... I had to be brought low. I felt sorry for me, as if God could not know my physical tormenting incurable by Drs pain.
Tonight I was weeping uncontrollably as the pains did not respond to anything. I could not think straight to know WHAT to do, and my "protocol of care" evaporated.
Rob anointed me with oil and prayed over me in the name of Jesus. and amazingly in a minute God gave us wisdom to do something. God reminded me to go on Oxygen at a high rate... In 5 min the attack was over! Praise God who pulls me from the net of despair. Forgive me for my despair Lord...
So dear friend, Here I am a witness and I want to tell you
I am humbled to once again KNOW there is ONE who CAN and Does KNOW ALL MY PAIN and Here is my life verse...
in 2 Cor 1 vs 3-5 we comfort others with the comfort we have received from the Father of Our Lord Jesus Christ, The GOD OF ALL COMFORT
He will do that for you too. HE loves us all the same. He is the only one who can know your exact suffering, as HE suffered everything.
He is so close to you, He is yearning for you to turn to HIM. Please talk to him. Ask Him the truth to reveal who He really is to you. HE WILL.
He will give you HOPE to go on and pull you out of the pit.
I hope you peruse her site and enter the guest book. She has a very warm heart that beams through the pages of her books and her website, and patterns. What excited me MOST of all, is the Alex Shawl pattern is there, and this is a PERFECT pattern to start lace knitting, she also teaches you HOW to go from word pattern to chart reading. I have been frustrated for 2 years trying to find a lace pattern I could understand. Chart reading has been very problematic, But Debbie shows us step by step how the words transition into the chart! Very very nice site!!
God bless Debbie and her helpful heart.
May you be encouraged there as I was too.
Healthwise, Still fighting pain, I had to stop spinning for a bit as I only have a cd spindle and it spins too thinly as it is heavy. I am also now trying to learn to knit better. I do some weird sort of combination style and I have such trouble getting any patterns to work.
I need to quickly make some shawls and face coverings, arm warmers to keep me warm from breezes.
While you are at Ravelry check me out at HALALSILKS
God keep all of you as we transition seasons, I send warm gentle hugs!
If anyone knows HOW TO STOP LEG CRAMPS due to stopping steroid meds, please let me know. I am pretty crippled up by this too
Saturday, July 18, 2009
Being a bereaved parent of unborn infants is difficult.Long ago, We had been in the No Vermont group, but I am unsure if they are still going on so this video is of the Southern Vermont Group.
You may wonder WHY I placed this here... My children in heaven are still part of my life even though Our babies died years ago.
Grief from the loss of a Child is the most longest lasting grief and research shows this is a grief that is sort of with you all your life.
To me, I find the pain acts so erratically. For example, There you are one sunny day, standing on the edge of the water at the beach. There you are enjoying the day when Boom!!!like an ocean wave, It can suddenly knock you over, pulling you into an undertow of sorrow and depression Or like the remaining water , grief can just puddle around your feet. The baby aisle in the grocery store becomes one you avoid.
If you so desire, please Watch the video and see a lovely group remembering their children in loving ways.
2 corinthians 1:3-6 is my life verse and comfort be to all of you who have experienced the razor pain of a baby's death.
Friday, May 29, 2009
gifted me with the most beautiful soft alpaca knit cowl that she lovingly handknit!! I LOVE it. FOr us who are ill and need to keep parts warm this is perfect for protecting my face, head and neck and so soft can be worn inside or out
Friday, May 8, 2009
Sing along with me
Get free patterns from Knitpicks HERE
Gone are the days when there was little or no access to help. You are never alone. TNA exists to help you. Access their website 24 hours a day, or call the patient representative during working hours at 1-800.929.3608.
TNA will provide you with the latest information and research on facial pain, and will help you connect with national and local support and physician referrals.
“When you do nothing, you feel overwhelmed and powerless. But when you get involved, you feel the sense of hope and accomplishment that comes from knowing you are working to make things better.”--Pauline R. Kezer, chronic illness counselor
Here is what people with facial pain want you to know:Please, don’t try to “fix this” for us. We don’t need you to. We just need you to care about us and let us know that we are loved by you.
Please don’t feel discouraged if we don’t become completely “well.” We are confused and scared much of the time, however, we desire to live as well as we can, despite how sick or how much pain we must bear. Please don’t give up on us, or we might too.
Please stay in touch with us! Send us a note, an e-mail, or call us. We may not get out so much, however, we sure need to be in communication with you.
Please acknowledge that we are ill, but don’t press us for a full report unless you want to really hear our complicated life.. Rather than asking the standard, “How are you?” question, please say, “It’s good to see you here.” If you really want to engage with us, ask us, “What is this like for you?”
Please avoid platitudes such as, " You must not have enough faith for your healing". OR “God never gives you more than you can stand.” This doesn’t help us to accept our illness any better, and it’s likely to hurt our faith in times when we are suffering deeply..
Please don’t overlook our family members. Sometimes we get all the attention and they get very little and the pressures on them are, at times, much greater than the pressures on us.They may need a good meal and a good listener! Many are burned out!
Please help us in practical ways. Rather than say, “Please let me know what I can do to help you,” offer specific support based upon your own gifts and time allowances.
Please invite us to events and things even though we are ill. We have limited energy, but most of us still can get out and do things - we just have to plan carefully. It will really bless us if you’ll tell us that you’ll understand if we need to cancel at the last minute, tell us if we will be exposed to wind or cold, or be outside or inside if you take us somewhere new. If you ask us what kind of things might need to be done in order to make us most comfortable at the event.
Please tell us about your life, and don’t feel you can never complain about anything - because “compared to us you have nothing to complain about.” All of us have our “stuff” and we want to support you through yours. We don’t believe we have the monopoly on difficult circumstances -- we care about what you are going through too!
THANK YOU FOR CARING ENOUGH TO READ OUR POSTS!
- Grocery shopping
- Meal preparation
- House cleaning
- Car maintenance
- Getting recycle containers down to curbside
- Running miscellaneous errands
- Watering Plants
- Helping with the yard
- Drive you to an appointment
- Picking up a child after school or practice
- Go with daughter or son to school event
Other Practical Help You can do:
- Help plan the week
- Help Organize tasks
- Calling job to work out details
- Look through mail and clear clutter
- Help with taxes
- Write thank you notes
- Help you plan a birthday party
- Arrange for small dinner party for you and spouse/family
- Organize medical information
- Search internet for information on illness
- Attend doctor appointments
- Help process medical treatments
- Help with insurance forms
- Set up email communications to friends and family
Visit Family Caregiver Alliance for support-givers.
- Pray with you
- Lend you encouraging and spiritual DVDs, CDs or books
- Take you out for coffee, to church, or to see friends or family
- Send you encouraging and spiritual cards
- Take you on an outing to a place you enjoy
- Remind you regularly that they care
- Even if it’s hard to understand how she can hurt so badly, yet look so “normal”, please believe her when she says she is hurting. She really is.
- Volunteer to do some research on the internet for him about the illness.
- Put meals in disposable containers and include a note telling her she doesn’t need to return the containers.
- Invite her to do spontaneous things, like go to the park, or have a picnic. She may be more able to participate since she knows it’s a good day or a bad day.
- Validate his illness by asking him if he’d be willing to encourage someone else who is struggling with pain.
- Take your friend’s dog out for a walk.
- Never minimize his illness by saying things such as, “I’m sure it’s all going to turn out just fine.” It makes him feel that he can’t be real with you about his fears, and he needs to be able to express them.
- Ask her if she’d like you to go to an appointment with her, just for the company.
- Remember anniversaries, such as the when he was diagnosed or when he had major surgery. Just a phone call saying your remembered him is enough.
- Ask him, “What do you wish other people knew about TN?”
- Tell her, “I made some soup and have extra - when can I bring some over?“
- Treat your friend to a gift of movie rentals (such as Netflix) via mail. ($7 to $15 a month).
- Stormy days often cause pain; drop off some bubble bath.
- Buy him a microwaveable heat pack.
- Ask him if he’d be interested in writing something for your community or church newsletter about what it’s like to live with a pain-related illness.
- Ask, “I’m going to Costco tomorrow - what can I pick up for you?”
- For a creative gift, provide holiday-themed paper plates and napkins.
- Don’t tease him, ever, about his illness.
- Offer to drive him to an event or activity which he needs to attend. Ill people often don’t attend events for fear that they will be in too much pain or become too tired to drive home.
- When you are out together, be her advocate if needed, to make sure she can receive proper seating or assistance. Please be tactful, and don’t call attention to her needlessly.
- Say, “While you’re in the hospital, I’ll pick up your mail.”
- Find out if you can pick up medications or anything else after surgery, to save the family a trip out.
- Be careful not to try to give lots of opinions about how to treat her illness. If she asks for your advice, give it very carefully.
- Encourage her that it’s okay to not know if she’s making the “best” or “right” decision(s). There are no guarantees and she’ll appreciate your supporting her.
- Don’t tell him about your friend’s cousin’s boyfriend’s best friend who had the same diagnosis and was cured through - unless you have truly useful information to share.
- Find out what his favorite author is and go the library and check out books for him.
- Say to her, “I know you must need to vent once in a while. I’m available.”
- Send her jokes via email - but only if they are funny - and never ask her to “pass them on.”
- Don’t make your family member the center of your life, no matter how much pain he is in. You will both wind up worse for it, if you do.
- If he has a disabled parking tag, don’t feel so excited about using it. If he’s having a good day, he might feel well enough to walk, and enjoy not having to park in the “handicapped space.” Don’t whine about your having to walk farther.
- Buy her some note cards and stamps. They always come in handy.
- Accept that his pain may not go away. If he’s accepting it, don’t tell him the illness is winning, and he’s giving into it.
- Don’t say, “Let me know if there’s anything I can do.” People will rarely say, “Well, yes! Will you clean my house?” Offer something you are willing to do.
- Buy a magazine subscription for him.
- Give her a hand or a foot massage. Touch is an important part of healing, but normal places of massage may hurt her, such as her back or head.
- Hang up a birdfeeder where your friend can easily refill it.
- Understand that you don’t need to know all the details about her illness in order to be helpful.
- Ask her if you can help her make or return phone calls.
- Go to an event he has to miss and take photos, perhaps even getting friends to write him notes. Then, take them over to his house and have a “mini event” with him.
- Buy him a hands-free head set for his phone.
- Don’t ask when she is in pain, “What’s causing it?” She doesn’t know. Instead ask, “What can I do for you?”
- Bring him small gifts and say, “These reminded me of the time we. . .”
- If she’s not getting out much, ask her what she’s missing most. See how you might bring part of it to her, if possible.
- Tell him about your life, and don’t feel your struggles aren’t worth sharing. They are. He still wants to be “in the game of life” and be a support to you too.
- Write her scriptures that you have depended upon in difficult times, using bright markers.
- Instead of saying, “I’ll pray for you,” ask, “I’d like to pray for you right now. May I?”
- Call her up on the phone and sing her a silly song.
- Give her extra help during Thanksgiving or Christmas. As you are baking your Turkey or Christmas cookies, bake her extra. It will lighten her load.
- Go visit for no reason at all.
- Be someone who cares and doesn’t give up in the hard times - it’s the right thing to do. Expect the unexpected; look for the miraculous; be the keeper of the faith.
All Kinds of Head and Facial Pain
How Friends & Family Can Help a Person In Pain
Rest Ministries and Hope Keepers
Post your great site as you comment on this post. God keep you all, Grace
Thursday, May 7, 2009
Let those of us who sit in suffering be encouraged today.
Saturday, April 25, 2009
Wednesday, April 1, 2009
This is a research site with knitting lessons from the UK. They are doing research about knitting or sewing and pain management!!
Wow.. what I thought all along!
And what many in pain Knew..
check it out!!
Sunday, March 29, 2009
And Read the NEWEST ISSUE OF KNITTYSPIN HERE!
PS I am Halalsilks at Ravelry.
Wednesday, March 25, 2009
Are you spinning? If so, let me know!!
I am presently working on carding some really tough mohair but when It opens it is lovely. It is a bit prefelted by the people who dyed it. That is something one can't see by getting it online.
What are you up to with your spinning, knitting, crochet or what?
I had my TN injections the 6th of march and am waiting for another remission. I pray your pain is better today.
Wednesday, February 18, 2009
An Amazing Fragile but Working Spinning wheel. I would love one!!
It is gorgeous isn't it!
Pain may make you feel fragile but if you can put your trust in the Lord, He will help you in the dark and hard times. He will raise you to a new life.
enjoy this video of wonderful spinning,
See this dear one in the midst of a TN attack. YOU CAN HAVE TN WITHOUT having MS.
I have spent many hours on the floor or in my husband's arms wailing from TN. This is a glimpse. God bless this woman.
She has MS with TN.
thanks for watching the video,
Sunday, February 15, 2009
A bit more about TN to let you become more familar with it and what can be done for it.
Unfortunately I have fought it 24 yrs so do not qualify for that treatment.
It is best to have MVD Done when you are in the disorder for fewer years..
here to inform,
How to learn difference between Combs and Carding to prepare fiber for spinning!
Enjoy and have a pain free day,